This is Archie.
He's a joyful, curious little boy who lights up every room. In December 2025, he was diagnosed with LMNA-related congenital muscular dystrophy.
A word we'd never heard before.
Before December 2025, we had never heard of L-CMD. Suddenly we were learning about genes, lamin proteins, breathing, heart care, and specialists we never expected to need.
Because L-CMD is so rare, answers were hard to find, and so were other families who understood. We also found dedicated researchers, advocates, and parents who are already pushing for treatments.
We want Archie to have every chance, and we want the same for every child with this diagnosis.
Turning our fight into something bigger.
The Archie Foundation is how we're turning our family's fight into something that helps others. We're focused on two things: supporting families living with L-CMD today, and funding the science that could change what this diagnosis means tomorrow.
Thank you for being here and for caring about Archie. It means more than we can say.
Tanner & Afton LeishmanFounders, The Archie Foundation
